Wednesday, November 26th, 2014

The Obameter

Fully fund the Combating Autism Act and Federal Autism Research Initiatives


"President Obama will fully fund the Combating Autism Act, which provides nearly $1 billion in autism-related funding over 5 years, and work with Congress, parents and ASD experts to determine how to further improve federal and state programs."


Updates

More funding for autism aid, but short of stated goal

Back in 2008, Barack Obama made a promise to "fully fund the Combating Autism Act.”

The first signs of progress on this promise occurred in our first update when the Obama administration included $211 million for autism-related funding in the Fiscal Year 2010 budget.

Next, when the provisions of the initial 2006 Combating Autism Act were about to expire, Congress passed the bipartisan Combating Autism Reauthorization Act, which Obama then signed in September, 2011.

The legislation reauthorized crucial funding for various research, screening, education and treatment programs.

During Fiscal Year 2011, the budget included $237.8 million in funding for various autism activities at the National Institute of Health, the Center for Disease Control and the Health Resources and Services Administration.

A Health and Human Services spokesperson also told us that the estimated funding for Fiscal Year 2012 would total $237.6 million.

Finally, the president's Fiscal Year 2013 budget requests $238.2 million under the Combating Autism Act, but this is only a request and has not yet been approved.

Additionally, the Combating Autism Reauthorization Act only authorizes funding for three years, not the initial five promised by Obama during the campaign.

At the end of the day, Obama signed the Combating Autism Reauthorization Act and has included funding in each of his budgets so far. But the law authorizes money for three years, not five, and in that time period it's unlikely total funding will equal $1 billion. Still, Obama has provided significant funding to address autism, so we rate this promise Compromise.

Sources:

Interview with Scott Badesch, president, The Autism Society, Nov. 14, 2012

Email interview with Tait Sye, spokesperson for U.S.  Health and Human Services Dept., Nov. 15, 2012

International Business Times, Autism Law Needs Reauthorization, Dec. 21, 2010

Congressional Budget Office, H.R. 2005, Sept. 19, 2011

Association of University Centers on Disabilities, Combating Autism Reauthorization Act of 2011, Oct. 2011

Robert Menendez, US Senator for New Jersey, Menendez Announces Passage of Autism Bill, Sept. 27, 2011

Legal authority for the program has been renewed

In September 2011, both the U.S. House of Representatives and Senate passed the Combating Autism Reauthorization Act of 2011. President Barack Obama signed the bill into law on September 20, 2011.

The new law is a follow-up to the Combating Autism Act of 2006, which expired at the end fiscal year 2011. The act re-authorizes funding to combat autism for three additional years. Approximately $66 million of the total $693 million authorized by Congress will go toward funding the Developmental Disabilities Surveillance and Research Program. Around $144 million will be allocated to autism detection and education. The remainder will pay for items such as research grants at the National Institutes of Health.

Note, however, that Congress merely authorized these funds; it did not appropriate them. This means that Congress has approved spending limits for these programs but hasn't yet made the funds available. The Combating Autism Reauthorization Act is a big step toward fulfilling President Obama's promise, but until Congress actually puts its money where its mouth is, we will continue to rate it In the Works.

Sources:

The Combating Autism Reauthorization Act of 2011 - Public Law 111-32, full text.

The Combating Autism Reauthorization Act of 2011 - Major Actions.

The White House - Office of the Press Secretary, statement, September 30, 2011.

The Times (Trenton), "Autism funding bill expected to be signed into law; among the advocates is Rep. Chris Smith,” September 30, 2011.

Congress on its way to fully funding Combating Autism Act

President George W. Bush signed the Combating Autism Act in 2006, which authorized expanded research, prevention, and treatment of autism spectrum disorders through fiscal year 2011. As president, Barack Obama has promised to fully fund it.

Autism is a developmental condition that usually appears before age 3. Though the severity of symptoms vary, autism-related disorders decrease a person's ability to communicate with and interact with others. According to the Mayo Clinic, an estimated three to six out of every 1,000 children in the United States have autism, with the number of diagnosed cases rising in recent years, for reasons that are a matter of dispute.

The administration took the first step toward full funding when it included $211 million for autism-related activities in its fiscal year 2010 budget for the Department of Health and Human Services. That sum includes $141 million for the National Institutes of Health, $48 million for the Health Resources and Services Administration and $22 million for the Centers for Disease Control and Prevention. And the relevant House and Senate appropriations bills are expected to either fully fund his request or come close.

The White House says that both chambers' bills fully fund the president"s request for autism-related activities at HRSA and CDC, but neither bill specifies a funding level for autism research at NIH. That's because both bills include language objecting to earmarking funding for research on particular diseases or disorders. Still, the White House said that NIH expects to be able to fund autism activities at the president"s requested level given the amount of funding that NIH would get in total.

The House has passed its version of the appropriations bill, while the Senate version has cleared committee and is awaiting action by the full chamber. Once the Senate passes the bill, members of the House and Senate would produce a single bill that then has to be passed by both chambers and signed by the president. Congressional appropriators are aiming to have the remaining bills passed by Thanksgiving, but that deadline could slip.

Meanwhile, the president on Sept. 30, 2009, announced that NIH will "provide the largest-ever infusion of funding into autism research" using a portion of $5 billion allocated to research under the economic stimulus package.

"Across the country, grant recipients will have the opportunity to study genetic and environmental factors of a disease that now touches more than one in every 150 children," Obama said during a visit to NIH. "What we learn will hopefully lead to greater understanding, early interventions, more effective treatments and therapies to help these children live their lives and achieve their fullest potential, which is extraordinary."

On Nov. 4, 2009, NIH announced the awarding of more than 50 autism-related grants for autism research, totaling $65 million.

Until the appropriations process is complete, we'll call this promise In the Works.

Sources:

Barack Obama, remarks by the president at the National Institutes of Health, Sept. 30, 2009

Congressional Quarterly, " One Month Late, Seven Bills to Go ," Nov. 2, 2009

National Institutes of Health, "NIH Awards More than 50 Grants to Boost Search for Causes, Improve Treatments for Autism" ( news release ), Nov. 4, 2009

MayoClinic.com, definition of autism, accessed Nov. 5, 2009